News
2011 Patient Protection Bill
Switching of Anti-Epileptic Drugs
The Epilepsy Foundation of Long Island and the Epilepsy Foundation of America is seriously concerned about the substitution of antiepileptic drugs (AED) by pharmacists and public and private payers, without the knowledge and prior approval of the patient and treating physician. Generic products present a welcome opportunity to save costs for people who require chronic use of medication; however, experts in the treatment of epilepsy have consistently reported a significant number of people who cannot be switched from brand name to generic, generic to brand, or among generic to generic versions of the same therapeutic agent, without experiencing side effects, toxicity, or unexpected "breakthrough" seizures. We are gathering personal stories/data in order to make our legislators aware of the potential problems associated with medication substitution in the hopes that they will promote the "Patient Protection Bill." If you have experienced any such negative effects of anti-epileptic medication substitution, please contact Janet Romeo at (516) 739-7733 x145 or at comed@epil.org. You can get more information on this subject by going to www.epilepsyfoundation.org/medicationswitching.
Texas Children's Hospital uses Laser Surgery for Epilepsy
Houston pediatric doctors have begun treating difficult epilepsy cases with laser surgery, a safer, less invasive alternative to opening the skull and cutting out brain lesions that cause the disease.
Read the article. | Watch the video
INFORMATION
Five Towns Neuroscience Research
Five Towns Neuroscience Research is currently performing clinical trials and is seeking patients with an established history of epilepsy, who are between the ages of 18 and 70. For more information, please click on the link below.
Five Towns Flyer
One-Visit Research Study
Dr. Cynthia Harden and Connie Lau, MS, Certified Clinical Research Coordinator are recruiting women between the ages of 18 to 50 years old to participate in a one-visit research study at LIJ Medical Center. Eligible participants will receive a check for $25 as reimbursement for their time and effort. Please see attached flyer for details.
Clinicial Trials
Information about Clinical Trials being conducted by the Feinstein Institute for Medical Research.
